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tv   Discussion Focuses on Sesame Street and Autism  CSPAN  April 6, 2017 3:34pm-4:48pm EDT

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speed of sound." watch the 15th annual annapolis book festival live on saturday at 10:00 a.m. eastern on c-span2's "book tv." researchers and advocates discussed autism awareness at an event on capitol hill. speaks included julia, "sesame street"'s newest character, who is autistic, and the co-chairs of the congressional autism caucus. hol holly robinson peete moderated this eventually which features a preview of julia's appearance on "sesame street," set to air april 10th. my name is jasmine. i'm 7 years old. i share my bedroom with my little sister. she's 6.
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our big sister alissa is 11. she has her own room. my little sister has autism. she can't talk. we all get ready for school together. some things are really hard for her like brushing her teeth and brushing her hair. it takes all three of us to do her hair. she doesn't like the way the brush feels. elissa and i sing. i feel happy i can help. she gets a lot of attention in the morning. but my big sister and i get time with my mom and dad too. dad is really good at putting on jewelry. he helps alissa while my mock brushes my hair. i like how she does it. >> pretty. i love it. >> i love having my little sister. she is amazing. >> i think you're amazing. hi there!
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i'm here with yasenia who is full of joy at the moment. and also jasmine and elissa. we'll find out how amazing their family is. what do you like best about your family? >> we all are equal, it doesn't matter if she has autism, my parents aren't just going to focus on her and leave me and jasmine out. >> hi! let's have a group hug. let's all hug. i'm in the middle of love. i'm in the middle of love! ah, this is the best. [ applause ] >> well, welcome, everybody, to this standing room only crowd. i see phases in the back standing. i'm jeff dunn, i'm the president
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and ceo of sesame workshop. i'm delighted to be here and to welcome all of you to this important and wonderful event, "sesame street" and autism, see the amazing in all children. i want to spend a few moments with you just talking about why this event is so important, why autism is so important to sesame workshop. and perhaps the best way to do that is to quote, the quotes are always great. this one is from the famous american poet maya angelou. she said something once that goes to the heart of who we are and the work we do. she said it's time to teach young people that in diversity there is beauty and there is strength. in diversity there is beauty and there is strength. and that's really been what sesame workshop has been about from the very beginning. since we first started, we have promoted this sort of expansive attitude. and we created one of the first truly racially diverse neighborhoods on television and
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one that featured muppets as well as humans of varying abilities. and just as importantly, varying disabilities. our focus has really always been to help kids everywhere grow smarter and stronger and kinder. and of course that is what this initiative is all about. all three of those things. let me just make one other observation, since we're here in this wonderful space in the capitol. kids, you know, our kids, our audience, they're little people, they're three feet tall, they are nonpartisan. they're too innocent to have bias biases, they're too innocent to judge. it means something to be here today with all of you who represent, you know, politics as well, to have you, regardless of that, to be here from both sides of the aisle, and be here for kids. and that's an amazing thing.
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so we appreciate that. we welcome you. we hope you learn something from today. and we hope this is a memorable event and the beginning of a great national conversation. so with that, let me turn it over to sherrie westin, our executive vice president for social impact and philanthropy. and she is the one who leads this tremendous group of people that have worked on this so hard, both on this initiative and this event. and it wouldn't be possible, neither would be possible without her. coming up, sherrie. she will be your host for the day. come on up. thank you. [ applause ] >> thank you, jeff. thank you, jeff. and most of all, thank you for your support. he has been the biggest champion of the work, and we're so grateful. but on behalf of all of my colleagues at the workshop, thank all of you for being here. to take the time to join us really means so much. the video you just saw is from
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"sesame street"'s initiative, see the amazing in all children. "sesame street" has a long history of this, as jeff alluded to, of looking at this issue through the lens of a child. we knew this was an issue we needed to address. we launched our initiative until the fall of 2015. and we had two very specific objectives in mind. one, to create tools and resources for families with children with autism, to make everyday moments easier. but second, we wanted to reach the public at large, to help destigmatize autism, to help increase understanding, awareness, and promote inclusion and acceptance. so this is where julia plays a critical role. so hopefully by now you have heard that julia is an adorable little 4-year-old girl.
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she's very curious. and she has autism. she was first created online as a digital muppet and as part of a wonderful storybook that was called see amazing one, two, three, writtenly leslie kimmelman who is here today, thank you, leslie. i must say, the response to this initiative and to julia herself from the autism community was simply amazing. and we decided that we needed to bring julia to life on "sesame street." i'm thrilled to say that the episode "meet julia" will appear monday on april 10th on hbo, on pbs, and on youtube, so we hope you tune in. [ applause ] but if you can just think for a moment that through julia we hope that children with autism will have a character they can identify with, hopefully feel less alone. but by introducing julia to her
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friends on the set of "sesame street," we are able to raise awareness and increase understanding and to model inclusion. when big bird tries to meet julia and she's a little less responsive, abby is able to explain that just because julia may not show it in the same ways, she still wants to be your friend, she still wants to play, she still wants to be included, just like all children. i must say on a personal note that the feedback from the autism community is really what makes this work so very rewarding. one of my very favorite stories came from a mother who had a young daughter with autism, and she used that wonderful book, "see amazing," to help explain to her daughter that like julia, she too had autism. and she responded, "so i'm amazing too, right?" so i do think that we, from all of these wonderful stories, there are so many of them, we know anecdotally that we're
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making a difference. i'm so pleased today because today we have research to support that. we are grateful to have the opportunity to share this with you, to bring together a panel of distinguished experts that we'll go to later, including the researchers who looked at the impact of this work. so we hope that will be a very important discussion around an issue that really does touch so many of us. but we are especially honored today to have congressman mike doyle with us from the great state of pennsylvania. and congressman doyle is serving his 12th term in congress. he serves on the house energy and commerce committee and is the ranking democratic member on the communications subcommittee. it was congressman doyle along with congressman smith from new jersey who founded the coalition for autism research and education, otherwise known as c.a.r.e.
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it's the first congressional membership organization dedicated to autism advocacy on capitol hill. this was in 2001, i think. today, there are 117 members of the bipartisan autism caucus which congressman doyle, along with congressman smith, still coach here. we are so grateful for your leadership on this issue and especially that you would take time to be with us today. congressman doyle. [ applause ] >> good morning. this is really an exciting day, and i'm pleased to be here. you know, when chris smith and i got together to form the autism caucus, one of our main objectives was to educate other members of congress about autism spectrum disorder. every few years we know that we need to get back to basics about what asd looks like and what we can do to reach out to our friend and neighborhoods who
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live with it every day. that's why it's so important about julia and the initiative being taken on by assess amsesa workshop and "sesame street." it's about taking it to the widest and most important audience out there, young kids and their parents. we announced the initiative right here in october of 2015. so it's very exciting to get to meet julia today at her first public appearance a little more than one year later. "see amazing" was created to provide resources to families, teachers and caregivers around the country, to educate them about autism. it also includes online guides and tools to help families touched by autism overcome common challenges like brushing teeth, crossing the street, going to the supermarket. the panelists that you're going to meet here today are going to be able to speak to just how effective the "see amazing" campaign has been. so i'm going to turn it back
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over to them. but i wanted to say that i'm honored to be a part of this journey and i'm excited to get to know julia, who can represent all of the amazing kids we know with autism. have a great day here. [ applause ] >> thank you so much, congressman doyle. and now i'm going to turn this over, so we can get started, to our moderator, holly robinson peete. holly is probably best known as an accomplished actress from "21 jump street," "hanging with mr. cooper." i think perhaps her most valuable role has been that of philanthropist and advocate. after her father was diagnosed with parkinson's and her son was diagnosed with autism, she and her husband, the former nfl quarterback rodney peete, started the hollyrod foundation, dedicated to providing hope to underserved individuals and families living with parkinson's
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and autism. i think you can see that holly's personal experience and the significant contributions she has made to the autism community make her an ideal moderator for today's event. but it's also worth noting that holly has a special connection to "sesame street." in 1969, when "sesame street" first launched, her father, matt robinson, was the very first warden. i think holly even appeared on the show as a little one. so we're especially pleased to have you with us today. welcome back. >> thank you. [ applause ] >> wow, thank you, sherrie, thank you, everyone, to everyone who had anything to do with bringing julia to us. this is such an amazing moment. as sherrie mentioned, it is a full circle moment for me. so briefly, back in 1969 -- i was 5 years old, and my dad came home. i was living in philly.
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he said, hey, i just got this great new gig. it's going to be in new york. i'm going to commute back and forth. i'm like, what is it? it's a children's show. oh, it takes place like on your block, and there's kids of all colors, and i was like, oh, good, well, good luck with that, maybe it will last. and nearly 50 years later, here i am, moderating this panel. i do have a son with autism who is the love of my life. i always like to say i wouldn't change my son for the world but i would like to change the world for my son. and that's something that i think anybody who has been touched by autism can relate to. the idea that there is a muppet, a beloved muppet who is like besties with elmo, who has autism, that is a game changer in the autism community. so i'm just so absolutely thrilled to be here. and i thank everyone from sesame workshop and "sesame street" for
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approaching this in a way that is so authentic. as an autism mom, this is something that is really helpful. for those of you who are not touched by autism, this is a wonderful way to educate you as well. so "sesame street" has a history of featuring and celebrating children of all different abilities. and now, with this new "see amazing in all children" initiative, they're showing just how amazing kids with autism truly are. and coming to a better understanding about autism through the beloved "sesame street" friends makes it all the more accessible, and it's all part of "sesame street"'s magic. >> did somebody say magic? >> oh, my goodness, it's my favorite fairy, let's give her a round of applause. >> hi, everyone. mwa, mwa. you're an honorary fairy, ms.
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holly. >> i always wanted to be a fairy. i'm so glad that you're here, abby. >> i had to be here. i just had to come, because i want to introduce everybody to julia. she's my my new friend. she has autism and she is amazing. >> well i'll bet she is. we cannot wait to meet her. >> yeah, well, i tell you we do all coincidence of stuff together. we like to play games everybody be and we sing boy can julia sing. she just loves to sing. oh wow and she is a good painter too process. >> i'll bet. i'll bet i can't jat to -- i heard a lot of your friends didn't really understand julia at first. >> yeah that's true. you know but i tell what you it didn't take long for her to see how amazing she is um-hum. >> well, you know what we have a clip of the first time that big bird met julia. shall we show that abby. >> you have that? >> we have that. >> you have that.
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>> yes shall we show that. >> that's a great idea miss holly. you stay right there show that clip i'll get julia. bye. >> all right. spo you are all in for a really great treat right now. we're going to show you a little preview of julia's first "sesame street" episode which will air april 10th. mark your calendars right now here is your sneak peek. >> here is some more paper guys. >> nice. >> hay welcome to "sesame street." >> we are having some fun with finger paints. >> high guys high elmo. high abby. >> high big bird. >> who is this. >> this is our friend julia. >> hi, julia i'm big bird nice to meet you. oh. julia? >> julia is just concentrating
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on her paining right now. you guys you're all doing a great job. >> ellen, i don't think julia likes me very much. >> no you two are just meeting the first time. >> oh, so she is shy. oh i get that i can feel shy sometimes too. >> with julia it's not just that. you see she has autism. she likes it when people know that. >> autism. well what's autism? >> well, for julia, it means that she might not answer you right away. >> yeah jewel requestia doesn't say a lot. >> that's right and she may not do what you expect like give you a high five. >> she does things a little differently. in a julia sort of way. >> oh, okay. >> and she is a lot of fun. >> yeah. julia likes being with her friends and she loves to play, too. >> play, play.
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play. >> you want to play now julia. >> play, play, play. >> we can all play together. >> that's a great are idea. >> me too can i play. >> hur big bird. >> so what shall we play? >> how about tag? >> i think that's a yes. >> oh boy i can't believe you found that. that's soic magical. hey miss holly would you like to meet julia i found her. >> you did. >> yes i did. >> i've been waiting so long to meet her. >> okay this is happening. okay zwrulia. julia. you can come out now. >> here she is. >> my goodness. >> hi. hi julia. >> you know miss holly when she won't say hi right away but
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answer right bau are away it doesn't mean she's not happy. she likes to jump when she is happy. >> excited. excited. >> i told you. >> well we are also so excited that you're here because we've heard so much about you julia. we'd love to learn more about you tell us the things you like to do. >> oh, well as you can see she loves her little bunny fluff sistership she likes to pet him. >> fluffs ter. >>ic see which you can you would like fluff. >> and julia loves to be around people miss holly. she likes to make friends. >> well, julia who are some of your friends? >> friends? >> friends. elmo. >> oh, well he is everybody's friend. >> big bird. >> oh big bird. you got to love big bird. >> abby.
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>> oh. >> yeah and you know what. we like to play tickle too and tag and paint. >> tickle. >> tickle. >> tickle. tickle. tickle tickle. >> see we have a lot of in common. >> it's so great i see you both have a lot in common yet both different. >> yeah but you know what miss holly we're all different anyway, all our friends like elmo a monster, big bird a bird i'm a fairy. you're a pretty lady. and julia is kid. so we're -- we're all friends though. >> that's right. that's right. we are all friends. i'm so glad you're friends. thank you so much for being here today. i'm so star struck right now you just don't even understand. >> you're so sweet. hugs. hugs miss holly. >> and kiss sees the other side i'm from l.a.
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>> oh jowlia and i are going to go play while you share your story. >> play, play, play. >> yes. >> thanks for being here everybody and thanks for you being so amazing. >> you're amazing too abby. julia you are amazing thank you so much for being here. >> bye. >> do you want to play. >> play, play. >> play, play. >> for julia and abby. wow. that's a moment, guys. can i just add a super-duper quick story that's relevant? you mentioned that i was on "sesame street." i did have one appearance. my father didn't want me to be on because he didn't want me to be a show busy kid see how that turned out. but he let me come on once. i had one line you i blew the one line. i was supposed to say hi gordon so i kept saying hi daddy. maybe one day sherry i'll make
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up for that still not over it 40 some years later. i'm excited to introduce dr. bruneau o anthony. he is the leader of the research team who whose work brings us together ton president dr. anthony is the deputy director for the center for kmield and human development and the vice chair of the department of pediatrics at georgetown university process his research interests range from children's mental health services to development cycle pathology to autism spurm zords to he received a national mental health institute in mental health services andrd he folksed his work on interventions for children with behavioral health and developmental challenges. so we're just very glad that he is here today to present preliminary findings regarding "sesame street" and autism. see amazing and all children. dr. anthony.
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>> thanks. thanks holly. it's hard to follow julia and abby. but i'll try to do my best. i'm really proud to have been involved with working with "sesame street" on the evaluation of this important initiative. and i really wants to recognize the hard work of my colleagues, many of whom are in the audience today with, from the georgetown center for child development and really great clab rarity as the center for autism spectrum zords at the national health system. so our goal in devising this evaluation was three followed we wanted to know how did parents feel about the website and the materials and its presentation and was it usel? second, we wanted to know whether exposure to the materials increased knowledge and acceptance of asd. we also wanted to find out whether viewing the materials
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led to increase in hopefulness. for parents of asd children in terms of greater engagement with the community and feeling he is of increased parenting competence and less parenting strain. so this slide shows -- outlines the general procedures of the study. first of all we really want to appreciate the more than 1,000 parents of asd children and nonasd children who participated in the evaluation. of those 1,000 that completed the baseline and -- all this work was through an online survey, about half then completed the follow-up one week later. and almost 20 parents of asd children completed the one-month
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follow-up. so here is the goal one. what were the reactions to the website content? so overwhelmingly parents viewed the website as engaging, informative and useful and this fwraf shows the high percentage of parents agreed made facts accessible, provided better understanding of autism than they had before. and almost 90% of parents felt they would recommend the site to parents of asd children. also, although each component of the website was rated at highly appealing parents in general found the routine cards the most he helpful. these are the cards designed to foster positive child behaviors by teaching parents how to simplify everyday activities and help children manage situations that can be challenging for all children but especially for asd
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children. so this is a -- this is a quote from one of the -- we elicited comments from parents and this is one quote which really points out the creative way that parents used these materials. here this parent used the cards putting them on poster board printing them out putting them on poster board. parents also reported that they really enjoyed the videos showing asd children and their families. you can see from this quote that the videos created greater acceptance in another child about his friend, the 6-year-old nephew. so again these comments were really quite informative,
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besides the actually data. that was the -- sorry there we go sorry. let's see the amazing -- the amazing, amazing results we've been able to compile. so first of all, what changes were seen in parents of nonasd children? so we look at two things, knowledge and acceptance. and to gauge knowledge we had parents answer questions about asd linked to the content on see amazing. these questions asked about things that can be more difficult for asd children and popular myths about autism we also wanted to know about acceptance. so parents watched the short shuts asd children and then answered question assessing the level of comfort that they would have if interacting with child in the video the questions wok like the child in the video makes me uneasy. the child in the video is
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totally different from other kids. parents rated those. you can see after viewing the video parents of non-asd children showed significant snnzing about knowledge of asd a but more important feelings of acceptance of asd children. half the parents showed increases in these measures. now these slides show some of the most powerful results which are changes reported by parents of asd children. so first, the survey asked about parents' comfort with including their asd child in community activities. parents were asked, how much they agreed with questions like i'm comfortable explaining to other parents how to best include my child, or because of my child's barefoots i've cut down on visits with my friends and relatives. but as you can see more than half of the parents felt more hopeful about involving their asd child in the community one
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month after exposure to the website. parents were also asked to rate how much their child's behaviors resulted in parenting strain, such as feelings of worry or tiredness or unhappiness. a majority of parents reported feeling less strain related to raising their asd child at follow-up one month after viewing the materials. finally, scores reflecting parenting competence, their feelings of confidence in general parenting behaviors, increased significantly from baseline to follow-up. this slide points out that it's -- and it's important to note that exposure to the website seemed most beneficial for those parents reporting the highest level of parenting
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strain. so this figure shows that highly stressed parents showed large reductions in scores reflecting feelings of stigma, like feelings of embarrassment or sadness over their child's behavior. but even more striking, there was a very large increase in parents' community engagement score, the likelihood of getting involved in community activities with their child. so often -- final thoughts, searching for supportive and accurate information has been a particularly risky prospect for those who want to know about asd. the first search can often return a deluge of misinformation, frightening of course statistics and terrible predictions for future of asd individuals. but see amazing focuses on the gifts of asd. appropriate services and supports and positive
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information. so our preliminary findings show that that focus can help a parent or other people work to reduce biases and stigma, increase acceptance and inclusion, empower asd children with knowledge and positive information about themselves and amidst many negative messages. so we're looking forward to new ways to -- to watch sesame workshop produce new ways to increase the range and impact of see amazing initiative. and we feel very privileged to have worked so far with them. thank you. [ applause ] >> my preempting for a second but i want to introduce one more very distinguished guest so fortunate to have with us and that's congressman chris smith from new jersey. when you heard from congressman doyle earlier you heard it was congressman smith who cochairs
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and who cofounded the autism caucus with congressman doyle. congressman smith serving his 19th term in the house. is a senior member of the foreign affairs committee but most of all we thank you for leader ship and the autism initiative taking the time out to join us today. so -- [ applause ] >> thank you i'll be very brief but i want to thank you for sesame workshop for its very enlightened and i think transformational initiative helping more and more young people, their parents. and really this country and thankfully the world too because this will be global, i believe over time. to understand those with asd, families, and with julia as a muppet who brings to life the daily challenges that a child with asd faces, i think it will have a really huge impact on the
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community. you know i've authored three laws on autism. the most recent is autism cares. and one of the -- besides providing shh 1.3 billion for cdc, nih and hrsa, all important aspects it also provided for a study about the 50,000 young people who matriculate from minor status to adulthood every year and what are we doing to be prepared for that? we also asked and got the second install amount of a gao study as to, again that same population, that same demographic. this kind of initiative and the georgetown study with which i read the executive summary, which i think is outstanding -- just providing the worth in changing communities, changing both parents and non -- and in parents of non-asd children, the attitudes, the behavioral change, the understanding --
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that will not only change every community, every household in america. but also also provide a climate where more effective legislation can go forward at the state and federal level. our next big challenge is the services bill. that's why we did the autism cares, one to continue the good studying going on at nih and the prevalence and surveillance study by cdc, but also figure out what do we do next on every single category from housing to education to continuing education. to employment opportunities, how a police department ought to deal with someone who is on the spectrum, particularly if severely autistic. a all of the challenges we have a blood pressure from gao, await going from the administration pursuant to that raw. but this kind of effort -- and "sesame street" which is like the gold standard for all of us. my kids grou up watching "sesame
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street." just has such a positive impact on attitudes and understanding. so thank you, again, the georgetown study gives empirical proof in backing to great work you've done. it is a privilege to be with you and to say thank you for your leadership. [ applause ] >> okay. well, i was over there doing social media. and of course my periscope jumped. and social media is a lot. but i got it done. hang on one sec let me get to where -- we're going to put together a really amazing panel. i'm so excited to introduce to
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you the panelists first we have -- these are esteemed members of the today's panel. you're going to be involve in a very stimulating conversation. dr. anthony your findings just were -- they had me gasping. just seeing -- hearing some of the things that you said as an autism mom. thank you so much for doing this work. so laura anthony, ph.d. specializes the assessment and treatment of children and teens with autism spectrum disorder and families. he research is focused on developing clarm strategies with children with asd. letter cognitive behavioral flexibility pmt dr. anthony received ph.d. in developmental and clingle psychology at university of illinois at chicago. and did training in child psychology at the university of maryland medical system. she was on the faculty at maryland for eight years and has been with children's national health system since 2007. so welcome laura anthony. come on up.
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julia bascom is the executive director at the autistic self-advocacy network. previously she did state level work in her home state of new hampshire. where she served on the developmental disabilities council and coled and interagency team to revitalize self-advocacy within the state. julia edited loud hands autistic people speaking and anthology of writings -- loud hands, autistic people speaking. say that right. and anthology of writings by autistic people and currently serves on the disability equality index advisory board. all right. the sen teen national disability advisory council and the board of advance class, inc. i got it out julia, come on up. give her a round of applause.
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[ applause ] dr. jeannette betancourt is the senior vice president for the u.s. social impact at sesame workshop where she oversees community and family engagement initiatives that engage children, families, caregivers and educators with research based resources, designed to meet the needs of typically underserved communities. she has directed "sesame street" initiatives in areas such as healthy habits, early learning bakes military family was transitions grief, incarceration of a parent and of course autism welcome dr. betancourt. [ applause ] welcome everyone i'm going to shift over here. and i'm so excited to be here with you all. so first of all let's talk about dr. anthony's findings what do these results mean? i know how i felt about them as autism mom speak to what the
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results mean. and why is increasing knowledge and acceptance about autism so very important? >> i think knowledge only gets you so far actually. that is not the finding that i am most excited about. i'm most excited about the increase in acceptance, particularly with the families who don't have a child with autism. because i really feel like that is where we need to have changes in our community our attitudes our believes. so that we can all be together. we can all see amazing. of course. and our friends with autism and our colleagues with autism are able to share their gifts with us and they have many. >> yeah, absolutely.
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absolutely. julia what do you think what are some of the reasons why this information is so crucial and valuable right now. >> so i think in a lot of ways the this data was exciting because it value dated what self-advocates and speem in the spectrum have been saying a long time. knowledge isn't enough in and of itself you really need to focus on increasing inclusion and sepds and that when you provide i like when he broke it town when when you provide positive stories and accurate information and talk about strengthsen a appropriate services and supports so on that has that impact and tangibly increases acceptance. and increases inclusion along with that. i also wanted to just say you know like autistic people experience a very drastically increased grate of bullying and anxiety and depression. i know this is a "sesame street" event but as a result of that the suicide rate is nine times higher in my community being able to see the interventions can make a difference increase
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increase is he acceptance and inclusion be over that trajectory is a huge deal. >> thank you for that absolutely dr. betancourt how are you making sure to reach families with kids with autism and the families without kids with autism with the resources? we talked about how important it is for those who don't have children on the spectrum to understand our kids. how are we reaching out to them. >> exactly as we're talking right now. the whole effort is inclusion. it is really -- these resources are actually the voices that we heard. so part of what we're hearing now in terms of our impact research really came from what we call our formative research. in other words we went out had spernts such as here but also heard from the voices of families who had children with autism as -- as well as those that had nonautistic children. we feel very strongly this is representing that scope. and we're working with many
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partnerships both that are directly servicing families and as well as those that are inclusion environments. and so our call to all of you as you're here is to help us to continue to share these resources that are so easily accessible. >> yeah, one of the things just interjecting that i thought that my son said to me. he is 19 now he is a young man. and he said i wish i had a julia. because in school i was the one that had to come advocate and tell the parents. it was really educating the parents i was talking about it with dr. anthony. i had to teach the parapets so much. the kids knew a little bit more about autism than the parents did. when i hear rj say i wish i had a julia because he did experience a lot of bullying. and to school was tough for him and socializing was tough. imagine if he is in school and then children are watching julia get to hear and see elmo and
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abby and big bird you know advocate for julia. that's a pretty powerful tool. >> it's the context that we're seeing i think what we heard from the results, right. in idea of feeling, i'm not alone. it's suddenly seeing myself. >> right. >> and in such a positive manner. and often we heard that what you hear is the negative side. >> um-hum. >> and here we're fostering common alts also what is all children share is there i want to say i'm so glad you're involved yuellia. i feel like sesame workshop really brought together a diverse group of people and organizations to cover all sides. because often sometimes -- another thing i get my cues from my son. he says he doesn't hear from people with autism nuch. >> no i think that's very true. i think even talking about the initiative today we a lot about
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families we talk about the kids who aren't autistic what's stick wg me the anecdote the mother who used the book to explain autism to the 4-year-old and the child said i'm amazing. i think what often gets be, the perspectives of autistic people are left out oh or it's assumed we don't have one. the reality is is that across the spectrum you hear over and over again that people figure out pretty early there is something different about us we know we get treated differently we have different experiences than other people do. en and someone doesn't explain why the only conclusion like a 5-year-old can come to there is something winning with me i'm bad, not doing this right. this is my fault and that can lead to some pretty difficult experiences for a lot of people. a lot of self-advocates talk about the power of knowing why when you have that bored i know we like to say labels go on soup cans not people but that word can be a way to see that like it's not -- you're not bad
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you're not broken there is a reason. when you have that reason everything sort of clicks into prays. >> correct. i think one of the other things that you talked about -- i mean i speak with about my son who is 19. and education and getting a job. eventually the young people that yuellia will impact so much have to grow up and have to work, and be self-advocates and all of that. this core understanding of what autism really is is just so powerful as they matriculate through life. so when corporations look to hire our children that are on the spectrum, it's amazing how much stigma that julia is going to eradicate just by her appearance on this iconic show as the -- so it's pretty phenomenal what else do you think will be the impact long-lasting impact of julia's
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appearance on "sesame street." >> i think you're bringing up a really great point about inclusion. that i think is important. the results that we were talking about today, that was just from people looking at a website. >> right. >> right. that's a very small dose of exposure. and if we want to reach the broad community how would we get parents to that website to get that information? that's a hard thing to do. >> yeah. >> right. but having julia on "sesame street" means -- who doesn't watch sess pay street. >> i don't know? anybody? >> everybody watches "sesame street." so she is then a part of the community. and then if there was a way that every young autistic kid could have not only be able to seeallia and tv but also have the see amundsoning book at home and a julia doll at home because
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julia can really be a symbol for everything that is possible about autism. and that's something for kids to hold on to that makes them feel amazing, too. >> one of the other elements of -- we talked earlier everyone knows "sesame street" is all about diversity. and that's something synonymous with "sesame street." but going back again to 1969 when my father first told me about this show, it was very ground breaking to have children of all colors and backgrounds be represented. to me, having julia on with her autism is just another -- another way to include and to have more even more diversity on "sesame street" do you all agree with me. >> absolutely. >> yeah, so this is -- dr. betancourt. >> yeah, it's -- yes, you're absolutely -- it's had an incredible history of diversity and looking at it in terms of different abilities, different
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racial groups, different languages. but most importantly we're also showing that in every day moments in life, like we all experience. and that's one of our key messages. it's really inclusion is not difficult if you have the understanding of acceptance. and we hope that we're always constantly m constantly modelling that for everyone big and small. >> the other piece is hope. one of the things that a lot of people get and our family did when we got our autism diagnosis. we didn't have a real hopeful moment then. we were told everything he would never be able to do. we call it the never-day. because it was such a moment. he's been able to tick a lot of those off the list. i'm proud of him. he has a job now. it's pretty amazing. but i often wonder if i had had a vehicle like "sesame street" how much more hope i would have had earlier.
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because for parents getting this diagnosis it can be really devastatesing. what you don't want to be is hopeless. i feel like this initiative and just the whole concept of see amazing in all children. because that is also an inclusive slogan, will give parents hope. don't you agree, laura you think that it will give more parents hope and it will help us in our parenting and in our day to day lives. >> yeah, i hope so. and i think -- i think to just add on to what julia had said a few minutes ago, if parents feel more hopeful, if they feel less stigma, if ner less worried about their kids, if they feel like they any how to get the services that their kids need, they know how to advocate for their kids and they can convey a positive message to their kids, i think that is not only going to help the parents -- not only hem the community but also for
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the children. and you know what -- what bruneau o saying was earlier about the amount of scarey information on the internet. if you haven't done this, those of you in the audience, just google autism. >> no doesn't do it. >> and i just -- so much -- hopefully today the first thing that will come up will be julia. >> she is -- she is already trending. >> which is great. but a week ago you would have seen things that would make you feel like autism is a tragedy. and those of us who know and love kids with autism know that -- i'm not saying there are not difficult moments, right. there are not things to advocate for. buts it it is not a tragedy. >> no it's not a tragedy but autism parents need help. and they need support. >> yes. >> and as long as we have help
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and support and then in this forum where we're able to see -- my favorite thing about julia is that when big bird asks, you know what is autism? and he says for julia it's this. because for those of hue are familiar with the autism community we always say if you met one kid with autism you've met just one kid with autism. it's a wide spectrum. one other quick point i wanted to bring up was that in african-american and some other communities children of color get diagnosed a lot later than their typical peers in other communities. so considering how diverse and how many children of color watch "sesame street," and parents, i believe this is going to help them get their children diagnosed and then get them that early intervention that they really need. i think that's really important as well. so. >> you know that's an interesting point. because this is truly the
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entirety of the nishive see amazing we made a very specific effort to be comprehensive in levels of impact, racial and ethnic diversity and also gender we saw boys and girls. and now it's also available in spanish. so you have everything that we can do to bring as much awareness as we can. >> do ago terrific job chl anything anyone wants to add before we open up to q and a questions. >> can i say about the spanish. >> sure. >> i'm hot sure i knew that. >> breaking news. >> i think what's important about that is you said that about kmupts of color. >> right. >> and hispanic latino kids are actually diagnosed the latest of any of our kids. >> yes. >> so that's -- that's such
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great news. >> and not only that but you know just really keeping it real on "sesame street," we -- we -- i will speak for my arken american community we tend to really be scared of anything that's to do the brain, diagnoses, the stigma in you're community can be really really deep. because of that we're often scared to diagnose our kids and we're scared of it. and because of that the diagnosis is later. and then the intervention doesn't come. i feel like this is going to help tsh help get more kids diagnosed and the parents as well process this. with that i believe we have a couple of questions. shall we take a couple of questions? okay? does anybody want to ask a request from the audience? we have a microphone for you. >> hi my name a sarah. and i am a communication attention person at the association of university
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centers and disabilities, which is a bunch of interdisciplinary research centers all over the u.s. that do research about quality of life for people with intelligentle and development disabilities i'm also a autistic self-advocate. i wanted to ask, would julia ever have opportunity to meet julia, that is i -- i know i personally would love to see julia the muppet interact with julia who is such an important figure in our community. not that i -- i mean i'm not writing for you obviously. but i just would -- i don't know i'd love to see julia have further where she interacts with autistic adults because it's so meaningful to me to see someone like julia so -- yeah, what are -- any chance of that? maybe? >> well, what's excitesing is that julia, and by coincidence
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the name happened to be julia over time. has been part of our process since the very beginning. so keep in mind that what we did is we had 14 organizations participate in every step of the way. and julia actually was so helpful and so many points from not only the way the whole initiative and its messages were. but also she went over the design of julia, the script of julia in different ways. i think as we go forward you'll see new things happening. and that possibility won't be ruled out. >> good idea. >> any other questions. >> thank you. >> hi, i'm liz wine traub with the association for union first center on disability as well. and my question is going
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specifically around on "sesame street." i know in the late '80s or early '90s. you talked about people with down syndrome. and because i had a friend on the show with down syndrome with the label of down syndrome, excuse me -- and my question is, do you think that "sesame street" would ever talk about different other disabilities, like cp or other kinds of issues? >> i can answer that. i think you heard that we have a history of representing different abilities and also in that disabilities.
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and we have actually shone a diversity in different challenges. everything as you mentioned from cognitive challenges, as well as have had cp as well there have been dancers who participated both with physical disabilities and also invisible disabilities. if we go over the history of "sesame street," you see such a broad range of representation. and again always in an inclusion model of different disabilities. so it's very exciting. >> i think we had another -- one more question over here. the microphone. there it is. >> hello my name a more of children on the autism spectrum intelligence a paid trishen. i'm aggravateful for the opportunity to be here i want to thank you for raising the awareness about african-americans and latinos. that's the population i serve moop. my question i have two questions. the first is how do we get this
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book in bulk? as we do diagnostics on children i think it's important to be able to zehm nature this information right away opinion and the second is what is the future for research in terms of further impact? because i can see something like this being used to do peer sensitivity in the school system and be able to measure that. because we we really think about children it is really having peers be understanding. . that's going to be the major impact as they get older and feel more empowered. >> so maybe i'll tackle the first question in terms of accessibility of resources and particularly not only the story but the whole scope. we did quite a bit of reern on how to dhifr the content. we know in the context of this community having easily accessible digital content that often goes with assisted devices and other means is very useful. so everything is available in
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two ways at "sesame street" .org/autism. all the the resources including the wonderful digital story book and that also has certain abilities in terms of turning off sound, putting on sound bigger buttonens. we also have it an app. you can download it. again that's "sesame street" and autism. and the app is available in all the different,kindle, apple, so on and so forth. i think in terms of looking at this it's how we -- the way we designed the resources are with everyone who is here in mind. both directly families themselves as well as any provider system that can integrate the materials into what they're doing. i'm turning it over to my colleagues on the research because we have some thoughts too i'd love to hear theirs too. >> yeah, i think we -- we need
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to come up with plan right julia. we have a lot of thoughts about next steps. and especially now that she is on the show. and we can have a much -- i want to call it a dose, right, a much larger dose of julia and the message of acceptance and seeing amazing in all kids. i would love to look at what happens now and particularly from the child perspective, we are we are not able to get only when it's online. if i worked at "sesame street," which -- which i don't -- but they're not going to turn my microphone off as long as i started that sentence -- tilled make the paper books and some great julia dolls and even the routine cards which are incredibly popular, available in paper for purchase or
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distribution and then the proceeds could go to organizations that you choose and maybe a little bit of it could go to further research. you know i think -- i think i just want to -- i want to say, again, even with just looking at the website, acceptance changed. and most of our antistigma campaigns or knowledge campaigns or increasing awareness, they might increase knowledge a little bit. but they usually don't increase acceptance. right? there is something very special about "sesame street." i mean of course. and julia. you know, there is something very unique. and i -- i would like to see julia really go big. >> go big or go home, right. well i can see you haven't thought this out at all.
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i can see this just came up in your mind. >> just off the top of my head. >> no but -- laura julia, jeannette, thank you so much dr. anthony. thank you to everyone that you -- >> one more question. >> yes of course. of course one last one. >> my name it tom i'm sorry to hold up your time. but i'm with autism speaks volunteer for autism speaks i'm also a self-advocate who works in baltimore city through an organization called path finders for autism. just going around explaining my side of the story and my question to you is, do you think julia, the muppet not -- not the panelist wsh julia be the muppet -- i know you covered this if you met one person with autism you met one person with autism. but do you think that people who
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are more personable -- i like little kids to watch "sesame street." do you think if they see julia they're going to be like oh everyone with autism alkts like this? is that a concern or is that something we just not worrying about? >> that's a good question. jeannette. >> again quite a bit has gone into how this is represented and designed. and if you hear -- if you listen -- we even heard it here, that it's julia's own unique autism, her way of doing things. i think as we know in any kind of diversity the focus is that you're not saying this is the one and only. so we made very, very strong emphasize on indicating the julia, julia is a special little girl just as any little girl is. and her autism is particular to her. so we feel that that's a key message in the way of relating
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both to children and adults. >> okay. >> if i could ad. >> go ahead. >> i think the challenge of a single story is the challenge -- the only solution would be to have 100 julias which i would be fine with. so another thing that can be done is like it doesn't have to be the other story. other shows other projects should be doing that as well. >> i also think there is going to be an effect, a "sesame street" effect where people are going to start presenting more representations of what autism looks like in their communities and i think that's really powerful. >> inspiring. >> yes very inspiring she is inspiring and will inspire people to go outside of their sidekickle as see what autism inspect in the community. i think that's important. we are towards the end of our program. i want to just say thank you to all of you for coming. thank you sheri for inviting me. this is a full circle moment for those of you who missed it so my dad was on "sesame street" in 1969. he started he was the very first
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guy to walk and turn pout and say high i'm gordon welcome to "sesame street." this is a clet hi full-time circle moment for me he passed away 14 years ago. the fact that there is julia and advocating for his grandson, r.j. he only got to meet a little while, it's really lovely. it's a beautiful thing. i couldn't think of a better way to kick-off autism awareness month. so thank you to everyone at sesame workshop thank you ladies for joining me. thank you doc i appreciate it i'm going to throw out a little video for you to enjoy have a great afternoon. >> play. >> oh sure we can play some more. >> oh, oh can i play with you guys. >> but of course. we can all be friends. >> yeah. ♪ we have our own special things that make us who we are ♪ ♪ and everyone is important
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♪ we can all shine like a star ♪ we may all be different but that's something worth praising ♪ ♪ it's who we are and who we are that makes us each amazing ♪ ♪ we can all be friends ♪ we can all be friends ♪ it feels a little better when we all play together ♪ ♪ we can all be friends ♪ >> there's another thing you have in common big bird, julia loves to play. >> oh yeah. ♪ we can all be friends ♪ we can all be friends ♪ it feels a little better when we all play together ♪ ♪ we can all be friends ♪ >> let's make tag. >> boing, boing. >> let's play boing tag.
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boing, boing, boing. >> so i want to thank everyone. i want to invite anyone who can stay to please join us for lurj. we'll also have characters in the back of julia if you would like photos taken if you like i would also say was holly not a great choice for moderator? and our unbelievable panltists. thank you all so much. >> one more. >> we have one more surprise guest. and what a peskar way to end. represent nita lowy the highest ranking woman be the highest ranking member of the apprehensions committee from the great state of new york. who has been a deer friend of "sesame street" so many years. >> and a deer friend of my wonderful friend sheri thank you i really love it. i'm just going to say a quick word because as ranking member in appropriations i've been
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particularly active for many many years on the committee on labor, health, human servicess, education. and we've got to increase finding money for the nih. and we have to figure out why the numbers for autism, youngsters keep increasing and snnz increasing. and awareness and education and focusing on lifestyle is so important to this effort. so rooim i'm sorry i missed that film. but i'm with you. and i'm a great supporter. and i march in the autism walk every year. and what is kind of really an eye opener for all of us is the numbers keep increasing and increasing. and we don't know why. so thank you. >> thank you, nita. >> thank you. >> take care. please enjoy lunch, he everyone.
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thank you. new york city talk with the creation and message behind both museums. >> why would you build is in washington people asked doesn't it blong in berlin around or jerusalem we designed the architect you are and exhibititions to try to answer that question. so the first part of your museum experience is hearing from that american gi who asked that big question is how is it that human beings can do this to one another? throughout the exhibitition we keep bringing back what america knew and when america knew it
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sunday at 10:00 a.m. eastern the sen kennelmen it of america's sfree into the great war the museum in kansas city, memo and tooth pull it'ser price winning historian ondavid mccullough how the founders view education and slaven a persevered in the face of hardship. >> first seven presidents of the united states, john adams was the only one who never owned a slave. out of principle, not because he couldn't necessarily afraid. out of principle. and abigail's feelings about it were even more strongly voiced than his. >> and then at 8:00 and the presidency, university of virginia presidential scholar barbara perry talks about the traits of a great president. >> the sign of a good leader is a leader self-confident but not arrogant. so confident -- so confident in his own leadership and in his intelligent that he didn't worry about having really smart people
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around him. >> four our complete american history tv schedule go to c-span .org. sunday night on q and a. >> so here was a yellow pad where haldol heman brights down in the midst of the october 1968 we're going to monkey wrench lyndon johnson's peace initiative. this is something had always been rumored and bits and pieces had come out over the years but nixon zmied it at the time to lyndon johnson and he denied it to david frofrt pb denied it to biographies always said he never played any roll. >> john fairly long-term journalist and author of the nixon the life and mr. nixon's political career early days in congress to tenure downfall at president. >> the way the watergate team was assembled they were clumsy
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sing cynical burnt out intelligence agents supervised by young men on nixon's staff wanted to be one of the famous quotes go, the cat that brought the dead house to the president's door. >> sunday night at 8:00 eastern on c-span's q and a. >> the aligns for health reform hosted a discussion on the future of medicate and how the program will be impacting by proposed health care policy. a panel of health spernts experts sieltd several studies and medicaid and talked about access to health services in ruler areas. the republican failed effort to repeal and replace the affordable care act and the role of state governments in providing quality health care to residents with proposed policy changes in play.


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